Its not often I get to be alone these days……..
For those of you reading this that don’t know, I have FSH Muscular Dystrophy. An incurable muscle wasting disease. With no treatment or cure, I try to live every day like its my last.
I have support workers come in everyday to help me out with things I can no longer do for myself. Dressing in the mornings, meal prep for the day, washing and cleaning, then at the end of the day I have a support worker who puts me in the shower, prepares my dinner for me, attends to my catheter and tucks me up in bed for the night.
My independence is pretty much non-existence. The only time I have to myself is in the evenings once I’m tucked up in bed and sometimes weekends during the day. This is my rest time. This is my “ME” time.
Silence is golden and I enjoy every minute of it, when I get it.
It becomes tiring having to make conversation with someone when your not up to it. I’m lucky to have understanding support workers who now know me well enough to know just by looking at me, that I am tired or in pain. Thankfully during those times, I get to have time to myself.
We all need that down time!
One of my most favorite things to do with my “ME” time, is take a ride to the beach. By ride, I mean, by myself in my powered wheelchair. I live in one of the most prettiest spots, close to beaches and a walking path that take you from one end of the peninsula to the other, Clontarf Beach to Scarborough Beach. www.visitmoretonbayregion.com.au/natural-attractions/the-moreton-bay-cycleway-redcliffe
I love to cruise along the foreshore of this beautiful peninsula, in my wheelchair, taking in the breathtaking scenery along the way. I never leave home without my camera, my hat, a water bottle and some spare change for lunch or just a cold fizzy drink. Sometimes I take a bunch of photo’s and sometimes I take none. It all depends on the day. I love the sea breeze on my face, the sun sprinkling diamonds across the water and the soothing sound of waves lapping in over the rocks and sand along the foreshore.
I have a favorite place to sit at Woody Point, where I munch down on some whiting fillets and chips, followed by a coke (glass bottle only, as a treat). All the while listening to the calm lapping of the waves and taking in the view across the bay to Sandgate foreshore.
Everyone needs “ME TIME” …